Remap News

Charles Adams of the Shropshire panel needs help with the following please:

I am at a standstill with a case and wonder if the Remap community could help.

This lady is in her late 40s and suffers from Crohn’s disease and this has resulted in the surgical removal of large amounts of tissue from her buttocks.

She can stand and walk to a limited degree, but to avoid pain she must lie on her right side (pain prevents her from lying on her left side) and this is without variety, is uncomfortable and limits her social interaction.

Together with her OT, we have discussed some type of kneeling support/chair, but the available types require support from the buttocks and this would not be tolerable.

The lady has an ileostomy bag that would limit her ability to be supported on her front and also has a condition that prevents underarm support.

Any and all ideas are sought to help this lady.

All best,

Charles Adams

charadam@btconnect.com

A lady has contacted Remap for help to make the action of her piano easier. Is this something anyone has experience of? She has already consulted a piano tuner who advised it cannot be adjusted. I quote from her email:

“I am a pianist and have been diagnosed with focal dystonia in my right hand. My piano has a very stiff key action, which is greatly exacerbating the problem because I can barely hit the keys with the fingers on my right hand. The hand surgeon who diagnosed the disability suggested a different piano with softer key action that I can actually play. I cannot afford to buy a new piano as I am not currently working, but wondered if there was any way Remap may be able to help find a solution.  Music is my life and it is very distressing battling this condition with an instrument that it so difficult for me to play.”

Any advice you can give would be appreciated.

Robert Monk

Remap Berkshire Case Officer

Berks.CaseOfficer@remapgroups.org.uk

Can anyone advise Steve please?

 A few years ago we developed a strategy for stair gates and room gates with our OTs and its now county wide.. The basic premise is of course we are engineers and not trained in the evaluation of risks and entrapment

Recently we came across a case to “ gate off” an adult. It seems to our investigation that this is well documented in care homes but not in ones own dwelling

 Has any panel got any experience that may help us

Thanks

 Steve Bloor  Shropshire Case Manager

stbloor@icloud.com

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We have just received a self referred enquiry from a lady who has Charcot Marie Tooth disease  which manifests itself in her having badly deformed feet and she already has specially made insoles in her shoes to help her to walk. This is a progressive disease and she now needs new insoles plus ankle supports and to make anything suitable is beyond any skills we have in Merseyside.

Has anyone had a similar experience and can offer help/advice?

Tony Fennell (Merseyside)

anthony.fennell1@ntlworld.com

We’ve had the following request from an OT near Scarborough. Is anyone able to help?

I am a family coordinator for a social care team in East Riding. I work with families who have children with Special Education Needs and Disabilities.  I was hoping you would be able to  help a young boy I am working with.

The child is 6 years old. He has been diagnosed with a condition that affects the shape of the skull. It affects this boys face where one side of his face is further out and the other is more sunk in.

This boy loves swimming but he had to stop as the next part of his lessons involved going under water. He is unable to wear standard children’s swimming goggles as water gets in the lenses due to the shape of his face. 

This boy would love to be able swim as he gets a lot of enjoyment out of swimming as well as gives him regular exercise and interacting with his peers.

If someone would be able to help get this boy back swimming we would all be very grateful.

If you’re able to help, please contact central office and we’ll put you in touch with the OT. Thanks all!