Nov 082018

Charles Adams of the Shropshire panel needs help with the following please:


I am at a standstill with a case and wonder if the Remap community could help.

This lady is in her late 40s and suffers from Crohn’s disease and this has resulted in the surgical removal of large amounts of tissue from her buttocks.

She can stand and walk to a limited degree, but to avoid pain she must lie on her right side (pain prevents her from lying on her left side) and this is without variety, is uncomfortable and limits her social interaction.

Together with her OT, we have discussed some type of kneeling support/chair, but the available types require support from the buttocks and this would not be tolerable.

The lady has an ileostomy bag that would limit her ability to be supported on her front and also has a condition that prevents underarm support.

Any and all ideas are sought to help this lady.

All best,

Charles Adams

Nov 062018

Had an interesting request from an OT today. The scenario is a client with epilepsy who also has a learning disability and an impaired level of mobility (poor balance/stability). The requirement is a sensor at the bottom of the stairs and another at entrance to the bedroom so the parents are alerted when he is moving about upstairs (or about to go upstairs) so they can supervise – but that only alerts when the client is moving as opposed to anyone else. This implies a proximity system based on something the client wears and would trigger the sensor within (say) a few feet.

Ideas I’ve been mulling over are:

A simple infra red transmitter that pulses every few seconds to conserve battery life. This might work (perhaps in the form of a device clipped to clothing) but the IR could bounce around and trigger the sensor from a greater distance, or if focused (or obscured by the client), could miss the sensor altogether.

A 433mhz band transmitter of the type used for simple remote control switch applications. But not sure the range could be attenuated to the point it would only work at a few feet.

Passive RFID tag – the range of operation is way too short. i.e. the tag has got to be very close to the sensor as there is no internal power.

Active RFID tag/active reader – the readers tend to be very expensive and the range will end up too great.

Any other ideas welcome!


Oct 222018

A lady has contacted Remap for help to make the action of her piano easier. Is this something anyone has experience of? She has already consulted a piano tuner who advised it cannot be adjusted. I quote from her email:

“I am a pianist and have been diagnosed with focal dystonia in my right hand. My piano has a very stiff key action, which is greatly exacerbating the problem because I can barely hit the keys with the fingers on my right hand. The hand surgeon who diagnosed the disability suggested a different piano with softer key action that I can actually play. I cannot afford to buy a new piano as I am not currently working, but wondered if there was any way Remap may be able to help find a solution.  Music is my life and it is very distressing battling this condition with an instrument that it so difficult for me to play.”

Any advice you can give would be appreciated.

Robert Monk

Remap Berkshire Case Officer

Oct 112018

John Hill (NE Wales Remap) asks:

I have a new client who cannot grip the cords to control a window blind. The blinds have not yet been bought. I’m hoping that someone in Remap could give me some advice as to what sort of blinds (fitted in a conservatory) would be best suited or know of any devices available to help him grip the cords? Motorised blinds will be too expensive. His gripping ability is expected to improve slowly with time.

Many thanks,

John Hill


Sep 202018

Can anyone advise Steve please?


 A few years ago we developed a strategy for stair gates and room gates with our OTs and its now county wide.. The basic premise is of course we are engineers and not trained in the evaluation of risks and entrapment

Recently we came across a case to “ gate off” an adult. It seems to our investigation that this is well documented in care homes but not in ones own dwelling

 Has any panel got any experience that may help us


 Steve Bloor  Shropshire Case Manager




Sep 202018

David Rowlinson from Guernsey has contacted us for help.  Does anyone have any ideas which may help him? Perhaps he could find a local tradesperson to help if we supplied the ideas?

David is happy to be contacted directly if anyone can help.



I have a muscle wasting condition called Inclusion Body Myositis. My biggest issue right now is climbing stairs and getting up from chairs etc. I need a leg device which could hopefully assist with this.

thank you for considering.



Sep 202018

We have just received a self referred enquiry from a lady who has Charcot Marie Tooth disease  which manifests itself in her having badly deformed feet and she already has specially made insoles in her shoes to help her to walk. This is a progressive disease and she now needs new insoles plus ankle supports and to make anything suitable is beyond any skills we have in Merseyside.

Has anyone had a similar experience and can offer help/advice?


Tony Fennell (Merseyside)

Sep 122018

Anyone fancy taking this on at a distance?

An OT in Pembrokeshire has asked if we could make a small cover to go over the controls of a powerchair, to stop the child it belongs to from turning it on and off at inappropriate times. He’s happy to provide photos and measurements.

Please comment below or email Sophie if you’d be interested. Thanks all!

Sep 102018

We’ve had the following request from an OT near Scarborough. Is anyone able to help?

I am a family coordinator for a social care team in East Riding. I work with families who have children with Special Education Needs and Disabilities.  I was hoping you would be able to  help a young boy I am working with.

The child is 6 years old. He has been diagnosed with a condition that affects the shape of the skull. It affects this boys face where one side of his face is further out and the other is more sunk in.

This boy loves swimming but he had to stop as the next part of his lessons involved going under water. He is unable to wear standard children’s swimming goggles as water gets in the lenses due to the shape of his face. 

This boy would love to be able swim as he gets a lot of enjoyment out of swimming as well as gives him regular exercise and interacting with his peers.

If someone would be able to help get this boy back swimming we would all be very grateful.

If you’re able to help, please contact central office and we’ll put you in touch with the OT. Thanks all!

Aug 242018

It’s another Big Life Fix case for you all!

Mersey panel have had a request from a lady with cerebral palsy. She uses a wheelchair and communicates through her laptop.

She would like to be able to enter her own PIN into card terminals independently.

I believe the BLF team solved this using a mobile app and physically tethering the phone to the wheelchair with a very strong cable? I’m sure she’d be open to more low-tech solutions though!

Anyone want to take this one on remotely? Comments below please!