Oct 162017
 

Hi

We have received the request below but unfortunately the Bath panel no longer exists.  If anyone is willing to travel to Bath  or can has any suggestions please reply to me

p.allchin@remap.org.uk

Thanks

 

My daughter Laura, who is 9 years old, has absence epilepsy and she has about 150 absences per day and each time it happens, her head rolls backwards and sometimes it rolls so far back it is actually hurting her neck.  At the end of the absence, she will lift her head back up again and carry on as normal.  She is in every other way a normal girl who is in mainstream school but sadly her absences are becoming quite bothersome for her due to the extension of her neck.

 What I think she needs is a support made of flexible material that will inhibit her neck from extending too far backward but will not stop all other neck movement.  I have just gained consent from her neurologist in London to get something designed for her if possible.  It would perhaps need to be worn like a sports bra but have some sort of device extending from it to support the lower part of her head.

 18 months ago, we did meet with your Bath REMAP representative and he thought something could be designed.  At the time, we had not gained the support from Laura’s consultant, so we did not pursue it, but now we have gained consent, I would really like to see if something could be done.  I guess realistically, her measurements would need to be taken for the design person to work out the best way for a device to work effectively, therefore, they would need to meet her.

 Let me know if you have some willing person in your organisation who may be able to help us.  As I said I would be more than willing to meet any costs incurred.

 I really appreciate your help.

 Best wishes

 Susie

 

Jun 292017
 

Electronics advice needed by Essex North please

Essex North are making another Squeezie (we made 2 many years ago) and the clients still find them helpful.  It is a device made from two air mattresses encased in a sailcloth bag the client gets in between the mattresses and air is pumped in and it gently squeezes the client, the school staff who use this want to be able to monitor the pressure used for each use. Pressure is fairly low and I’m thinking that with suitable sensor the whole session could be logged on to a laptop, so I need help with data logging and a pressure sensor, I guess actual pressure is not that important so calibration may not be essential. I also imagine when the client moves in the bag pressure will increase and decrease hence the data logging if we have a pressure reading at intervals it can be averaged and presented graphically.  At present we have no electronics expertise in the panel so thought I’d ask for help. This is probably a case of I know what I want but not how to achieve it, commercially available sensors seem incredibly expensive.

Ashley Slater  ashley.slater@btinternet.com

Jun 152017
 

Richard Brown, Basingstoke is asking for help with this please.

Lucy is a young, very sociable lady who is a resident in a very special care home supporting young adults with complex needs and visual impairments. Her health issues mean that she now has to have all her meals pureed to a very fine degree. The meals are industrially produced and supplied in frozen packs. Her carers say:

‘Once, her favourite thing to do was going out for meals and to be able to choose what she would like to eat from a menu. She has little control in her life due to health needs but she always remained in charge of her meal choices. This is now an impossible task. Restaurants and pubs refused to puree meals and any technology we purchased would not puree her meal to a safe consistency. If our individual had a small battery operated portable puree machine than she could go back to what she loved most. She could join her peers in restaurants of her choice and enjoy days out without having to bring a flask from home which contains her ready pureed meals.’

This the wish, but the deeper problem is that even in the care home kitchens they cannot produce meals to the right degree of ‘puree’ particularly when the ‘wish list’ includes meats and other difficult foods. At present she is entirely dependent on the commercial supplies.

We are out of practical ideas on this one, does anyone know an answer?

Richard Brown – Basingstoke Panel.

Email: brown@ilexind.plus.com  Tel: 01189 700100

Mar 152017
 

Has anyone any ideas of how to help Terry from Jersey?

Thanks

Paula p.allchin@remap.org.uk

 

I don’t know if you might be able to help me please, I’ve stumbled across your website by pure chance. I’m disabled with multiple sclerosis, have limited mobility, but still drive with hand controls.

I was driving using the steering spinner shown on this web page and also below: http://alfredbekker.com/product/tetra-grip-flat-steering-spinner-quick-release/ ,

 

but when I changed car I left the spinner in the old car because the buyer wanted it and I thought it’d be a good time to treat myself to a brand new one with new foam, however Alfred Bekker have told me that they’ve stopped making those spinners because it was apparently too hard/time consuming to fit the foam all around.

Their webpage (http://alfredbekker.com/product/tetra-grip-flat-steering-spinner-quick-release/ ) has never been updated and still shows an old product image, to Alfred Bekker’s discredit and to my frustration, they seem incapable of correcting the erroneous photo.

 

Having actually bought the spinner again from Alfred Bekker, what I actually got was the new version, it’s like the photo below, except it has foam around it, i.e., the same as what I wanted, except it doesn’t join up in the middle.

So I’ve got an idea. Maybe I can get somebody to join a new spinner in the middle somehow by welding or bolting some metal across the gap, and then once the gap is bridged, get the whole oval covered in some sort of durable/comfortable foam or handlebar tape?

 

What do you think? Is that a viable idea? And would you maybe be able to help me please?

 

Thanks and regards, Terry Leavis

 

 

 

Mar 082017
 

David Martin has been asked for help from someone in Plymouth and the nearest panel is unable to help.

All I know is that she’s a double below knee amputee with lupus and a mum to 4. She wants a way to keep knee pads on whilst ‘walking’ on her knees and a way of fixing flippers to her stumps for swimming!

d.martin@remap.org.uk

 

Oct 272016
 

(posted by Paula Allchin)

 

Colin Knight (Southampton group) has a client with MS, limited mobility and little strength in her arms. She has a large electric mobility scooter and a helping dog which likes to chase tennis balls for exercise. He is trying to make a device to throw a tennis ball about ten to twenty yards and after firing will “re-cock” itself electrically from the 12volt scooter supply. Needs to be fairly compact to mount on the scooter. There is a device called “Go Dog G4” but it is very bulky.

colinknight5@talktalk.net

 

 

Jul 182016
 

(posted by Paula Allchin)

Can anybody help Hilary Cresswell (Lancs NW) please? 

A blind wheelchair user would like to have a Guide Dog but he needs to be able to control his electric chair whilst holding the dog’s harness and he only has use of one hand. The obvious solution is to find another way for him to control the chair. Does anyone have any suggestions?

hilarycresswell3@gmail.com